How can my husband, family, and friends meet my needs when my symptoms are “unpredictable, unexplainable, and unresolving”? When do you send flowers or bring a casserole to someone who’s going to be sick her whole life? This dilemma brings another burden to the chronically ill: We are the ones responsible for communicating our pain, exhausting as it may be. We can’t get our physical and emotional needs met if we fail to make them visible to others.
Thanks. God bless.